After the diagnosis process, it seems like life suddenly gets really hard when you realise you are going to have to change significant aspects of your lifestyle in order to thrive. This period of despair lasted about 2 months for me, but even after 6 months to a year I still sort of felt like a newbie at the whole thing.
But once the dust has settled and you know what you’re doing, life still isn’t easy. It can be embarrassing and socially isolating to have to refuse food when everyone around you is eating. You put your health in another persons hands any time you let anyone else cook for you (or eat out at a restaurant). Food costs more.
I wrote a post about life as a coeliac three weeks ago, and I received such positive responses and comments from people identifying with what I said. It can be really tough. But what I want to know is, what is the one thing that continues to make your life hard even once you know how to cook gluten-free, talk to restaurants, and generally cope?
What is the one thing about having coeliac disease you wish you could change?
I’m genuinely curious. Leave your comments below.